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Michelle’s Journey

Michelle has created this fantastic video to describe what it is like for her living with a Rare chromosome disorder

Alli’s Story

                On January 20th 1983 my first born a beautiful baby girl was born 6pound 13 oz . She was perfect in every way. Only when I couldn’t get her to feed...

Eva Pym

This is a page to share all about our beautiful girl Eva and the tough journey she has been on through her short life.Eva was born full term on the 16th July 2010 weighing 1.86kg. Only 24 hours after...

Evie Medlyn

                Evie’s Story So Far Evie was a much waited for and wanted baby. Chris and Anne had planned out everything, when they found out they were expecting they were overjoyed. The...

Tara’s Story

                              In 2005 Tara was born. From the moment she was born she was trouble. Her apgar scores were only 1 and then 3. It...

Georgia’s Story

Personally, going through the incredibly challenging experience I explain below and live with on a day to day basis with my Rare daughter Georgia has been one of the hardest things I have ever done in my life. As...

Rachel's Story

Rachel’s Story

Hi my name is Rachel and I have Cri Du Chat or 5P- but I am a mosaic which means some of my cells are affected but not all of them. I was mainstreamed all through out my schooling...

Taylor’s Journey

Taylor is new to ARCAN but he has an important story to tell about who he is and what he offers the world through his gorgeous smile and his amazing journey.

Sarah's Story

Sarah’s Story

Every day I am reminded in some way that Sarah is special. It took a long time to reach the place where I stopped comparing her to other children her age. Instead of achieving her HSC this year, we...