Genetic Alliance Australia Formerly AGSA
Rare Voices Australia A Unified Voice For all Australians living with a rare disease!
Organisations out side Australia
Unique Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.
CDO Education, Advocacy, Information & Support for all those affected by a rare chromosome disorder.
Wikipedia General Chromosome Informations
NORD The National Organization for Rare Disorders is dedicated to helping the nearly 30 million Americans with rare diseases
SUPPORT & SERVICES
Ultimate Travel Insurance & Disabilities Guide
Written by Michael Morris
This guide offers essential information for travellers with disabilities including accessible travel destinations, the different health conditions normally covered by travel insurance, and many other useful tips and resources for travelling with a disability.
Outside of Australia
TOYS,TOOLS & LEARNING AIDS
FRIENDLY FACES & FOUNDATIONS