Genetic Alliance Australia Formerly AGSA
Rare Voices Australia A Unified Voice For all Australians living with a rare disease!
Organisations out side Australia
Unique Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.
CDO Education, Advocacy, Information & Support for all those affected by a rare chromosome disorder.
Wikipedia General Chromosome Informations
NORD The National Organization for Rare Disorders is dedicated to helping the nearly 30 million Americans with rare diseases
SUPPORT & SERVICES
Outside of Australia
TOYS,TOOLS & LEARNING AIDS
FRIENDLY FACES & FOUNDATIONS