We are a group of parents, who aim to help other parents and families. We have all walked the rare chromosome path and we are at different stages in our journey.
With our experience and support we want to help other families who are also riding along this rare chromosome path.
It can be so lonely when you have a rare chromosome diagnosis and a Doctor tells you that your child is only 1 of 5 children in the world with that chromosome anomaly.
No matter what statistics you are given, there will always be someone else who will understand what you are going through. Your family love you and want to help you but sometimes this is a journey that other people can not comprehend. That is why we are here, to try and help you in any way that we can.